Have you heard about Marfan syndrome? Extremely important to diagnose.....may save your life!
Have you heard about Marfan syndrome? Very important to diagnose early!!
May save your life!!
If you are tall, have long fingers, or are "over-elastic" [gamish], easily suffer from dislocated joints, have a very elastic skin [can easily lift the skin], or have a high arched palate ["chech"], long narrow face, indrawn chest [children] , scoliosis, had a pneumothorax in the past etc there are a few tests you can do your self at home and if their are positive then it is wise to ask your doctor if you may have Marfan syndrome.
Marfan syndrome is sometimes not recognized and as it has can have serious complications [ sudden death becuse of aortic dissection/rupture [which can be prevented]
A diagnosis is important.
will send you a few links [videos/ presentations] so that you easier may know how to recognize this condition.
Simply: anyone who is quite tall and has long fingers should think about the possibility.
https://www.youtube.com/watch?v=3F_uIYKizLo: showing some famous signs
https://www.youtube.com/watch?v=7bHItGdeh1c : useful interview
https://www.youtube.com/watch?v=y21C7gc-jFg : good explanation [bit technical] of the Mayo clinics
https://www.youtube.com/watch?v=4wSxrew6ocY : good ,more technical video